Auntie Manda and Jacey
Daddy and Jacey swimming it up
Daddy and Jacey after quadding
Bird Girl with her Easter hat
Well it has been a little while since being on here for sure! We (Jacey and I) have been back up to the Mac for a week hanging out with my brother while my parents went to Niagra Falls. It was a fun week getting to know my lil brother better, although I am beat and ready for a trade off with Jon. The Bird Girl is busy!!! Jacey is getting bigger and changing every day, has starting grinning alot more and even cut her first tooth. We named it Hercules!
We also got her MRI results back yesterday. Her doc told us that she has low white brain matter. Some areas are very thin while there are spots where it is absent altogether. This means that her brain sends the messages but b/c there is no white matter to transport it, her body isn't receiving. He said that this is probably what caused her to stop breathing when she went into the hospital and why it took so long for her eyes to focus, why she took so long to smile and why her arms don't reach or hold anything yet. This also affects her emotions, which I think is the hardest for me. It means she could be a totally different baby when things hopefully develop. We are waiting to hear from a few docs for appts. She needs to see a neurologist, opthamologist, hearing specialist, occupational therapist, physiotherapist and Jon and I need to go do some genetic tests. Once we have done these perhaps they can narrow it down to genetic or metabolic, like a pre/post birth injury of some kind. This is huge news for us and were kinda just going along with it and taking it all in. Luckily it isn't some debilitating disease or something she will deteriorate from so that is good news. We will just keep plugging along with it!
Now that my yucky news is done, we can enjoy some more pics of my cute kid!! Thanks for the thoughts and prayers, we DEFINITELY appreciate them.
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